03/16/2017 I have decided that I don’t have enough time for Crohn’s disease so I am going to ask it to leave.
02/19/2017 Its almost time for my yearly colonoscopy again which I have promptly about every five years. Got new doctors at Aurora Grafton Hospital this time rather than Froedtert because we have now moved north to Hartford. Making sure that I have an anesthesiologist present this time because last time I had some significant problems. Hope to God they don’t find anything that a Doctor considers interesting and that everything is just routine. I really would prefer not to have any additional surgeries. I don’t have the time for more surgeries and I sure as hell don’t want any. Maybe remicade is keeping everything under control long enough for some bright doctor to come up with a better long lasting cure or I might just die from something else before I need more surgery.
12/25/2016 I have found that Crohn’s disease is an incredibly expensive disease. It’s amazing what my insurance pays for my Remicade and other medications even without any operations. A rough estimate for medications is $100,000 per year and I plan on living a long time so I hope I can keep that insurance. I would like to avoid any major operations for as long as possible because the results are not something I like to think about. Crohn’s disease doesn’t usually kill you directly but it can certainly make your like very very uncomfortable. My father had told me I would be better off dead when I discribed Crohn’s but I think that he was a little excessive. I would like to stick around for a while because I still enjoy life.
(I can no longer find this link on the CDC website but it used to be there a few years ago. I have quoted a small excerpt below because it appears to match what happened to me.)