Hernia are uncool

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Hernia surgery will not help my hernia according to the surgeon at St Luke’s. Multiple problems would occur if the surgeons did attempt to correct the situation so I am going to have to learn to live with it probably for the rest of my life.

Surgery on the hernia would cause fistula’s to form due to Crohn’s disease and damage the area near my stoma. That would be a bad thing. I can barely keep my ostomy appliance on the way it is and additional problems with my stoma are not something I need. Any good results from hernia surgery would probably only last for several months before being wrecked.

My Cancer treatment could also be affected by the timing of the surgery or new cancer sites could be induced by the surgery. Not exactly charming concepts from my point of view. I am not really that enthusiastic about new surgery of any kind. Why waste the remainder of my lifespan recovering from a knife slicing me up and having bursting stiches when I get home?

The Hernia does give a unique appearance to my belly but it looks like its been shot to hell anyways. No surgery is my favorite type of surgery so I was not displeased with the surgeons recommendation.


Cheese Cake Factory with relatives

I am gaining a little more confidence traveling with an ostomy so I am able to travel to the Milwaukee area for a visit with my wife’s relatives at the Cheese Cake Factory today. It was very kind of them to take us out to eat. We haven’t seen this group in a long time so its great the we are able to catch up. I have never been to the Cheese Cake Factory before but the website looks like it has the kind of food that appeals to me. I like to eat tons of good food so this is a great treat.

I have been avoiding traveling and eating recently because of all the ostomy incidents that I have had. The nurse at the Oconomowoc wound care clinic had some good starting ideas on ostomy pouch application procedures and I modified his ideas to make them more practical based on the ostomy system I use and the odd shape of my stoma.

My stoma is a finicky little bastard that even most experienced wound care nurses are incapable of attaching a pouch to correctly. I need to have a more expensive complicated type of pouch to make it work in a reasonable manner. The pouches used by the traveling nurses initially simply didn’t work on me so I experimented with different systems until I found one that actually works. It is still less than perfection but I have ways of dealing with any problem even if they are not pretty. It doesn’t help that I have developed a hernia and broke a few surgical stitches along the way. Additional minor surgery will be needed to correct the situation.

At least a stoma keeps me alive and kicking which is better than the alternative. Where is that luscious cheesecake!?

Glenn’s Genetics pass the test

I got the results of my genetic testing back. Tests say my genes have no predisposition to cancer. I have good genes? Who expected that result?

I have been testing positive on all the other types of tests for one Medical problem or another. Finally got a nice negative test result. 👽

Glenn’s Genetics and Cyberknife

Cyberknife is the brand name of the radiation system that is being used to give me SBRT radiation treatment at St Lukes in Milwaukee. There is a 2 cm tumor in my right lung that is being burned out with intense pinpoint focused radiation consisting of three treatments. The radiation surgeon originally scheduled 5 treatments but everything worked well so I will only need 3 treatments at a higher concentration.

I was mildly incorrect about some of the terminology on past posts because I was given incorrect information by some of the people explaining the procedure . They were simply confused on the exact name of equipment and treatments. The actual radiation surgeon seems to know his stuff once I understood enough to ask him accurate questions. SBRT is a relatively new procedure that has been refined for about 10 years.

I am also having genetic testing due to the high incidence of cancer in my family tree. My cousin apparently has a similar cancer right now but she does not live nearby. There is a possibility that some treatment based on genetics may be available. I am not solely relying on acupuncture for treatment.

I believe God is capable of healing me with or without human intervention. Everyone dies in time. My grandmother had two types of cancer for about 30 years before she died of old age at 94. I would like to beat her record but that may not be God’s will. Either way is acceptable to me although I would get a sense of satisfaction getting my life insurance premiums back at age 99 per the life insurance policy I have.

“Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.”

Psalms 23:4 KJV https://my.bible.com/bible/1/PSA.23.4.KJV