Twitter, Blogging and Social Media are definitely compatible activities for Cronies (people with Crohn's). You can tweet and re-tweet even when you are incapable of standing up or are hooked to some intravenous set up. When someone is forcing you to watch the same episode of Walker Texas Ranger for the fifth time you can … Continue reading Twitter and Blogging are Crohn’s Compatible.
Remicade is going smoothly today. Everything is great except I need to sit here for three hours and watch it drip in ever so slowly. Wish I was someplace else doing something else. Oh well, they have WiFi and cable. Could be a lot worse than doing this every six weeks. Forgot to bring charger … Continue reading It’s Remicade Tuesday!
Prednisone has kept me out of the hospital for the holidays. It really works to stop the severe pain and other issues that I was having from Crohn's inflammation. Hopefully the increased dosage of remicade will be the longer term fix for the next decade. Apparently you have to taper off from Prednisone gradually but … Continue reading Prednisone works for my Crohn’s flare.
Got a new medication Prednizone. Doesn't look like much in the bottle and it's cheap. Could have side effects if used too long but hopefully it will solve short term Crohn's issues. Might improve the holidays anyways.
So I got some test results back that say I have inflammation in my intestine from Crohn's disease but there is no infection. I will get a much heavier dosage of Remicade starting Tuesday so I hope it works quickly. I would have had a new higher dosage last Wednesday but the hospital ran out … Continue reading Inflammation from Crohn’s in Intestine
I have reached the final age bracket. I enter many sweepstakes and I have just noticed that when they ask your approximate age, I am in the 55 plus category. There isn't any age group above mine. Even my cat is called a senior cat by the veterinarian. Seriously, I never expected to last this … Continue reading I never expected to live this long.
Before the doctors can increase my Remicade infusion frequency the insurance needs to be sure it will help me. Insurance companies don't like to spend $17,000 - $23,000 every six weeks for my remicade infusions. I sympathize with the insurance company because I don't like going to infusions for the next twenty years even … Continue reading Crohn’s Disease Testing Nauseates Me.
There are a lot worse things in life than Remicade infusions but that doesn't mean I have to like them. Doctor is going to increase the frequency of my Remicade infusions to every six weeks. It may be a good trade off if it reduces symptoms of Crohn's disease. Having a needle poked in me … Continue reading My Remicade Infusions to be Increased in Frequency
Another Colonoscopy in 6-9 months.....isn't Crohn's a blast of fun? I didn't have any cancerous polyps in April 2017 but things looked so fascinating to the doctor that she wants to do another colonoscopy within a year to see if everything is hunky dory. The Crohn's appears to be kept in check by the Remicade … Continue reading Another Colonoscopy in 6-9 months…..isn’t Crohn’s a blast of fun?